BPDCN Education started with a family story.
My name is Jonathan Sayeb. I started this project after my father, Stéphane Sayeb, was diagnosed with BPDCN, to make a rare disease easier to understand for families looking for a reliable starting point.
A rare disease often leaves families alone with too many new words.
When a family meets BPDCN for the first time, they have to understand terms about blood, skin, marrow, markers, treatment categories, and research. A lot of information exists, but it is not always easy to connect.
BPDCN Education is my response to that exact moment: a calm, bilingual, source-backed, organized space for learning clearly enough to have better conversations with the people guiding care.
An education product that is personal in origin and rigorous in structure.
Jonathan & Stéphane Sayeb
I am Jonathan Sayeb, the developer of BPDCN Education. Stéphane Sayeb is my father, and his diagnosis gave this project its urgency and meaning.
The project is public because other families may arrive at the same starting point: many questions, many new terms, and the need for a clearer path.
